Why Join Us?
Be a hero for our rare disease patients
At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them.
Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.
If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team.
Position Summary:
ultrafocused – Work together to fearlessly uncover new possibilities
This position will represent the global corporate affairs functions in EMEA region to include Policy, Government and Public Affairs (PGPA) and Corporate Communications. The Senior Manager will support the specific strategic priority of building relationships with key stakeholders and the development of key messages and content in partnership with the SVP Region Head of EMEA, the SVP of Corporate Communications and the Executive Director for Patient Advocacy EMEA. Engage with key external thought partners, leaders, policy makers, trade association and patient advocacy leaders on behalf of Ultragenyx and support compliant exchange of complex scientific information related to Ultragenyx areas of research, product development and commercialization.
Work Model:
Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on occasion as needed.
Responsibilities:
- Manage Ultragenyx relationships and activities with relevant external industry leaders, policy makers, patient advocate leaders, and local media as part of implementing the EMEA External Stakeholder Plan.
- Work closely with Head of EMEA at regional level and local GMs at country level to understand local dynamics, identify opportunities for representation and sharing our voice at key panels/meetings and ensure alignment to our global and regional strategies.
- Manage the trade association memberships, renewals and sponsorship opportunities on behalf of the Policy, Government and Public Affairs team, including coordination sponsorship efforts to include customized ads, speaker packets and logo placements.
- Manage Ultragenyx relationships and activities with relevant policy stakeholders including key members of the European Commission and European Parliament.
- Participate in key industry trade association meetings and US Chamber of Commerce Councils regarding rare disease and orphan drug policy positions (including diagnosis, development and access), and identify opportunities for leadership to be engaged in key discussions.
- Monitor key legislation in Europe, and work closely with the internal Global Policy Committee to ensure alignment with key messages.
- Represent Ultragenyx and serve as the primary press contact with rare disease communities and media in Europe, in coordination with global corporate communications; monitor press coverage in EMEA regarding rare disease innovation and access and distribute internally.
- Partner with global internal communications to elevate the patient voice and experience internally in support of Ultragenyx's patient-focused approach and culture.
- Provide alignment with global and regional strategies, identify challenges and opportunities, challenge local thinking to ensure we achieve excellence and give guidance and support as relevant.
- Ensure compliance with all internal and external guidelines.
Requirements:
- Bachelor’s Degree required
- 5-7 years experience in rare disease biotech, public affairs and/or government affairs
- Travel approximate 15%
- Location – Remote – Brussels/UK #LI-CK1 #LI-Remote
Full Time employees across the globe enjoy a range of benefits, including, but not limited to:
· Generous vacation time and public holidays observed by the company
· Volunteer days
· Long term incentive and Employee stock purchase plans or equivalent offerings
· Employee wellbeing benefits
· Fitness reimbursement
· Tuition sponsoring
· Professional development plans
* Benefits vary by region and country
Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws. Reasonable accommodation will be provided for all protected statuses or classifications protected by applicable law, including individuals with disabilities, disabled veterans, for pregnancy, childbirth, and related medical conditions, and based on sincerely held religious beliefs. Applicants can request an accommodation prior to accepting a job offer. If you require reasonable accommodation in completing this application, or in any part of the recruitment process, you may contact Talent Acquisition by emailing us at [email protected].
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Note to External Recruiters: All candidate activity and open positions are managed strictly through our Human Resources Department. Our Human Resources Department kindly requests that recruiters not contact employees/hiring managers directly in an attempt to solicit business and present candidates. Please note that failure to comply with this request will be a factor in determining a professional relationship with our organization. Submission of unsolicited resumes prior to an agreement set in place between the Human Resources Department and the recruiting agency will not create any implied obligation. Inquiries on developing a recruiting relationship with us, may be directed to: [email protected].
What We Do
At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them.
