Probably Genetic is changing the lives of patients living with severe, complex diseases. Our data platform is used by drug developers and patient advocacy groups to develop and launch treatments for these patients. Our technology discovers undiagnosed patients online, analyzes their disease state using machine learning and at-home testing, and enables compliant communication with patients. In doing so, we help patients access diagnoses, clinical trials, and treatments as early as possible.
We are a tight-knit group of hard-working, ambitious problem solvers united by a mission greater than ourselves. We do well by doing right by patients. We are developing some of the most cutting-edge solutions in healthcare, and our roadmap is packed with innovations in bioinformatics, AI, and drug development. We have built a lean, all-star team to help us bring our vision to life, and we want you to be a part of it.
Probably Genetic has raised multiple rounds of funding from Silicon Valley’s best investors, including Threshold, Khosla, and Y Combinator, and offer competitive salaries, comprehensive benefits, and meaningful early stage equity.
About the roleWe are looking for a Head of Community Marketing to build and lead our community marketing strategy for the patients, families, and caregivers of the rare disease population we serve. You'll turn a scattered, often isolated population into an engaged community, and turn that community into a growth engine for Probably Genetic.
What you will doDefine and own our community marketing strategy, spanning virtual (social, online groups, content, email) and in-person (events, conferences, meetups, fundraisers) channels
Develop original campaign concepts to activate and grow patient and caregiver communities
Build and own relationships with patient advocacy groups (PAGs) and foundations across hundreds of rare diseases, strengthening existing partnerships and cultivating new ones
Test and iterate across tactics, including referral and email outreach, PAG partnerships and sponsorships, events, participant compensation, and paid media
Track how community efforts influence key metrics, including patient acquisition and CAC, and adjust strategy accordingly
Build scalable, repeatable playbooks for community-driven growth
Represent Probably Genetic at conferences, fundraisers, and community events, with regular travel expected
We are looking for a few specific things that will help you succeed in this role:
5-10 years of experience in community marketing or community-led growth at a consumer brand known for genuine community engagement (health/wellness, fitness, productivity, or lifestyle products with passionate user bases are a strong fit)
A track record of building or significantly growing a community with active participation, members creating content, referring others, and organizing around the brand themselves
Creative instincts for community activation, from concept to execution
Fluency in both virtual and in-person community building
Comfort using data to guide decisions and identify what's driving growth, engagement, and CAC
Genuine empathy for engaging a sensitive, high-stakes population; you never lose sight of the real people behind the community
Strong written and verbal communication; you can shape a brand's voice and adapt it to a high-trust context
Willingness to travel regularly for events and partner meetings
Some things that are not required, but you will learn on the job:
Familiarity with the rare disease landscape or existing relationships within the rare disease community
As with all new hires at Probably Genetic, you will also need to be:
A good person. We work with some of the most marginalized populations on the planet and empathy is key
Patient-focused and motivated to have a lasting, positive impact on humanity
Comfortable in a fast-paced, often ambiguous environment with rapid change
Action-oriented and excited to build a company from the ground up
The salary range for this role is $120,000-$185,000 annually. Actual compensation offered will depend on several factors including but not limited to: work experience, education, skill level, and/or other business and organizational needs.
What we offer at Probably Genetic:An engaging and supportive team all on a mission to improve lives
Fair and equitable compensation with competitive early-stage equity grants
Generous Flexible Time off policy, that we actually use
Parental Leave Benefits (12 weeks for both birthing and non-birthing)
Hybrid, flexible work with high-trust and autonomy
A bright, inviting, pet-friendly office in Downtown SF near transit
Company-sponsored team lunch every Thursday
A “work from anywhere” policy, up to 4 weeks a year
Regular team retreats in exciting destinations
Health Benefits including medical, dental, vision, therapy, FSA, and 401k
And so much more!
Probably Genetic is committed to fostering a welcoming and inclusive work environment for people of all genders, sexuality, ethnicity, socioeconomic background and life experiences. We urge candidates of all backgrounds to apply. If you require specific accommodations as you interview or consider working with us, please let us know.
Skills Required
- 5-10 years of experience in community marketing or community-led growth
- Track record of building or significantly growing an engaged community with active participation, user-generated content, referrals, and member-led organization
- Creative instincts for community activation from concept through execution
- Experience building communities through both virtual and in-person channels
- Ability to use data to guide decisions and identify drivers of growth, engagement, and customer acquisition cost
- Empathy and sensitivity when engaging with high-stakes patient and caregiver populations
- Strong written and verbal communication skills, including the ability to shape and adapt a brand voice
- Willingness to travel regularly for events and partner meetings
- Familiarity with the rare disease landscape or existing rare disease community relationships
- Patient-focused mindset and motivation to create lasting positive impact
- Comfort working in a fast-paced, ambiguous, rapidly changing environment
- Action-oriented approach and enthusiasm for building a company from the ground up
What We Do
Probably Genetic helps undiagnosed rare disease patients find answers to their symptoms in a matter of weeks. There are over 400 million people worldwide that have a rare disease — more than cancer and HIV patients combined. Half of those patients are currently undiagnosed and half of them are children, and it takes 5-7 years on average for these patients to get a diagnosis. With our system, patients can get answers in a matter of weeks. Our online Symptom Checker identifies rare disease patients using state-of-the-art machine learning models, gets them tested through our direct-to-consumer genetic testing service, and helps connect these patients to potentially life-saving treatments and advocacy communities. We partner with drug developers to offer sponsored testing programs that allow patients to access genetic testing for little to no cost.


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